-
IDEA4RC at IFHNOS 2023
The Internatioanl Federation of Head and Neck Oncologic Societies held its 7th World Congress (IFHNOS 2023) from 21 to 25 June 2023 in Rome. Three members of IDEA4RC took part in it: Annalisa Trama, cancer epidemiologist at Istituto Nazionale dei Tumori and project coordinator, Lisa Licitra, medical oncologist specialized in head and neck cancers at…
-
IDEA4RC at the workshop on rare diseases, global health and social sciences
On 11 May 2023, Claudia Egher, social scientist at the University of Utrecht, presented the work she is conducting within IDEA4RC together with Susan van Hees and Wouter Boon at the workshop ‘Rare Diseases, Global Health, and Social Sciences: Counterbalancing Biomedical Reductionism’ organized by the Association for Anthropology and Medicine (AGEM). You can download the…
-
Extending Actor Models in Data Spaces
Simon Dalmolen (TNO) is the co-author of a new paper published in the Companion Proceedings of the ACM Web Conference 2023, which discusses discussing how computers and persons can relate to each other in an early stage regarding consent.
-
The role of real-world data in cancer clinical research
The emergence of the precision medicine paradigm in oncology has led to increasing interest in the integration of real-world data (RWD) into cancer clinical research.
-
IDEA4RC at ECHNO 2023
Pablo Parente Arias, surgical oncologist at Fundacion Profesor Novoa Sanots, presented IDEA4RC during the 10th European Congress on Head and Neck Oncology that took place in Lisbon from 8 to 11 March 2023 (ECHNO). Here you can find the program of the Congress. Head and neck cancers are one of the two families of rare…
-
Communication plan
Communication, dissemination and exploitation activities have the ultimate objective of fostering the progression from the results of the project toward its outcomes. The ultimate aim of IDEA4RC is enabling the re-use of quality health data by researchers in the rare cancers domain and beyond, which is currently undermined by lack of interoperability and by the…
-
IDEA4RC in the OECI magazine
IDEA4RC made its first public appearance in December 2022 in the magazine of the Organisation of European Cancer Institutes (OECI). You can read the article in the OECI magazine here.
-
Find us on Twitter and LinkedIn
The communication team just set up the project social media accounts. Please find us on Twitter and LinkedIn to get the latest updates about the project. Follow us also using the hashtag #IDEA4RC.
Intelligent ecosystem to improve
the governance, the sharing,
and the re-use of health data for rare cancers