Intelligent ecosystem to improve
the governance, the sharing,
and the re-use of health data for rare cancers

Public deliverables

WP1 Coordination
- D1.1 Quality Plan
- D1.2 Data Management Plan
WP2 Rare Cancer Data Ecosystem: scenarios, values and incentives co-creation
- D2.5 Metadata Taxonomy
WP3 FHIR capsules, data federation and AI layer
- D3.1 FHIR-Implementation Guide
WP4 Virtual registry layer
- No public deliverables yet
WP5 Natural EU Languages Processing toolkit
- No public deliverables yet
WP6 Augmented Analytics and Multimodal AI Data Navigator
- D6.1 Specification of Multimodality Navigation
WP7 Data Governance Layer
- No public deliverables yet
WP8 Pilot data sharing for rare cancer epidemiology, research and care
- D8.1 Rare Cancer Pilots Selection
- D8.2 Pilot Data Governance
WP9 Pilot technical deployment and measurement
- D9.1 Pilot Deployment Plan
WP10 Rare Cancer Data Ecosystem enlargement and liaison
- D10.1 Ethics Guidelines for Enlargement
- D10.2 Stakeholder Engagement Plan
- D10.3 Standards for a Rare Cancer Data Ecosystem
WP11 Exploitation, dissemination and communication activities
- D11.1 Plan for Communication Dissemination and Exploitation Activities
- D11.2 Communication Materials Including Website
WP12 Ethics requirements
- No public deliverables yet