Intelligent ecosystem to improve
the governance, the sharing,

and the re-use of health data for rare cancers


  • IDEA4RC at EUSPRI 2024

    Claudia Egher, researcher at Utrecht University, participated in the annual conference of the European forum for Studies on Policies for Research and Innovation (EUSPRI), hosted by the University of Twente. This year focus was “Governing Technology, Research, and Innovation for Better Worlds”. Egher presented the work done so far within the IDEA4RC project in collaboration…

  • IDEA4RC at RARE2023

    IDEA4RC will be presented in the poster session of the The 5th International Conference on Rare Diseases, which will be held in Budapest on 30 November and 1 December 2023.


    Laura López Pérez, biomedical engineer at the Polytechnic University of Madrid in the LifeSTech group, presented IDEA4RC on Friday 15 September during the 2023 Mediterranean Conference on Medical and Biological Engineering (MEDICON’23). This year the conference has been organized together with the International Conference on Medical and Biological Engineering in Bosnia and Herzegovina (CMBEBIH). The…

  • IDEA4RC at IFHNOS 2023

    The Internatioanl Federation of Head and Neck Oncologic Societies held its 7th World Congress (IFHNOS 2023) from 21 to 25 June 2023 in Rome. Three members of IDEA4RC took part in it: Annalisa Trama, cancer epidemiologist at Istituto Nazionale dei Tumori and project coordinator, Lisa Licitra, medical oncologist specialized in head and neck cancers at…

  • IDEA4RC at the workshop on rare diseases, global health and social sciences

    On 11 May 2023, Claudia Egher, social scientist at the University of Utrecht, presented the work she is conducting within IDEA4RC together with Susan van Hees and Wouter Boon at the workshop ‘Rare Diseases, Global Health, and Social Sciences: Counterbalancing Biomedical Reductionism’ organized by the Association for Anthropology and Medicine (AGEM). You can download the…

  • IDEA4RC at ECHNO 2023

    Pablo Parente Arias, surgical oncologist at Fundacion Profesor Novoa Sanots, presented IDEA4RC during the 10th European Congress on Head and Neck Oncology that took place in Lisbon from 8 to 11 March 2023 (ECHNO). Here you can find the program of the Congress. Head and neck cancers are one of the two families of rare…