IDEA4RC

Intelligent ecosystem to improve
the governance, the sharing,

and the re-use of health data for rare cancers

Health tech companies

Conducting research on rare cancers is difficult because data are scarce and scattered across several clinical centres. Researchers would benefit from being able to analyse data collected by many of them, but this is challenging due to a lack of interoperability and strict privacy regulations that limit data access and sharing.

To overcome these challenges, IDEA4RC has developed new digital tools that now require collaboration with the health IT community to bring them closer to real-world application and ensure their long-term sustainability.

If you wish to join the IDEA4RC data ecosystem and make it sustainable in the long-term

Click on the cards below to discover more about the six components developed by IDEA4RC as part of its collaborative rare cancers data ecosystem.

NLP
Annotator

Streamlines medical note review, creating structured, high-quality databases with traceable data links

FHIR-oriented Cohort Builder

Lets researchers securely define, query, and count patient cohorts across distributed data using FHIR

INFER

Web-based integrated development environment
for collaboratively designing, training, evaluating, and deploying biomedical ML models

Quality Check Helper

Semi-automatically evaluates tabular healthcare data quality, identifying inconsistencies, missing values, and anomalies affecting integrity

Data Permit Platform

For the preparation, submission, and evaluation of data access applications for federated learning

Data altruism
Manager

Enables rare cancer patients to share data with dynamic consent, blockchain logging, and chatbot support