Intelligent ecosystem to improve
the governance, the sharing,

and the re-use of health data for rare cancers

Communication plan

Communication, dissemination and exploitation activities have the ultimate objective of fostering the progression from the results of the project toward its outcomes.

The ultimate aim of IDEA4RC is enabling the re-use of quality health data by researchers in the rare cancers domain and beyond, which is currently undermined by lack of interoperability and by the difficulties encountered to comply with EU data protection requirements when sharing health data.

The long-term impact of the project is to enlarge the uptake of the IDEA4RC ecosystem, in particular among the EURACAN centres, the European Reference Network for rare adult solid cancers. To this end, a stakeholder engagement plan will be set up and carried out within the activities of Work Package 10 (Task 10.2).

A crucial step to achieve the aforementioned impact is to properly and effectively inform researchers, healthcare professionals (especially clinicians, data scientists and IT technicians) and legal and ethical experts (in particular those working as data protection officers in clinical centres) about the motivations, rationale and progress of IDEA4RC.

These communities are highly multidisciplinary and thus the first objective of the communication activities is to support dissemination activities and the deployment of the stakeholder engagement plan in order to translate into a non-technical language the results obtained in the different fields covered by the project.

Secondly, the communication activities aim at informing citizens and patients about how IDEA4RC envisages to advance the knowledge about rare cancers, a group of diseases where data scarcity is particularly serious and where the possibility to analyse data from multiple centres can have a great impact on research. 

To support both these objectives, communication materials will adopt a simple language, avoiding the use of technical jargon. This will not only serve the general public but also facilitate the communication between different experts in the project and beyond.

The document contains also a preliminary outline of the dissemination and exploitation activities, which will be further detailed later on in the project.

You can download the plan here.