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Presenting IDEA4RC to the Community of Madrid
On Tuesday 23 June, IDEA4RC brought researchers, clinicians, policymakers and innovators together at the Ministry for Digitalization of the Community of Madrid for a public session on how health data can be securely reused for research and better patient care.
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IDEA4RC will share lessons learnt in Brussels meeting
IDEA4RC representatives will participate in a meeting organized by the eCREAM consortium and POLHIS – Research Center for the Ethics and Politics of Health Data Ecosystems (University of Milan) together with the European Commission (Directorate-General for research and innovation) to share lessons learnt on innovative solutions developed for the secondary use of EHRs and patient…
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IDEA4RC presents its results at the Madrid Regional Authority
On 23 June 2026, IDEA4RC will host a workshop at the Madrid regional authority to showcase the project’s technical solutions and demonstrate its impact. Invited speakers will offer a broader perspective on the European cancer research landscape and discuss common challenges and potential solutions. You can find the event agenda here.
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Watch IDEA4RC at Vitalis 2025
The IDEA4RC project participated in Vitalis 2025, the leading eHealth event in Scandinavia, taking place in Gothenburg from May 19 to 22. Project partners presented ongoing work and share insights into the solutions being developed to support the secondary use of health data for rare cancers research and care. On May 19th, 15:00-17:00, Annalisa Trama…
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In a father’s story, all the reasons to pursue IDEA4RC
There was a time, a happy time, when I didn’t know what sarcoma was. There was a time I’d never even heard the word. That time ended suddenly in May 2015 when a doctor said to my 18-year-old daughter “You have a rare cancer in the blood vessels. It’s called angiosarcoma. It’s very rare and…
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IDEA4RC at Vitalis 2025
The IDEA4RC project is participating in Vitalis 2025, the largest eHealth event in Scandinavia, taking place in Gothenburg from May 19 to 22. Project partners will present ongoing work and share insights into the solutions being developed to support the secondary use of health data for rare cancers research and care. On May 19th, 15:00-17:00,…
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IDEA4RC at HL7 International WGM 2025 in Madrid
On May 13, 2025, Roberta Gazzarata, a biomedical engineer at HL7 Europe and an IDEA4RC member, led the “European Cancer Model” track at the Health Level Seven International Working Group Meeting in Madrid. During the session, Roberta and other speakers successfully completed the first candidate version of the “European Cancer Common Conceptual Data Model.” This…
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How IDEA4RC is contributing to the EURACAN Registry – a webinar for patients
On December 4, 2024, the European Patient Advocacy Groups of the EURACAN network participated in a webinar about IDEA4RC’s contributions to the EURACAN registry. The session featured Annalisa Trama, an epidemiologist at the National Cancer Institute of Milan and the coordinator of both the IDEA4RC project and the EURACAN registry. The EURACAN registry began in…
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IDEA4RC webinar series
The IDEA4RC project is developing innovative solutions to create a health data ecosystem on rare cancers. To find out more, join our webinar series: IDEA4RC partners wish to engage in an open dialogue with a wide and diverse group of stakeholders. Whether you are a researcher, a clinician, a software engineer, a patient advocate, a…
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IDEA4RC at Connect To Win 2024
On November 26th, 2024, Annalisa Trama, epidemiologist at the National Cancer Institute of Milan and IDE4RC coordinator, participated in the annual meeting of the DIGital Institute for Cancer Outcome REsearch (DigiCore), Connect To Win, which was held in Utrecht. Trama presented IDEA4RC activities as a part of the DigiCore Real-World Evidence (RWE) projects. They include:
Intelligent ecosystem to improve
the governance, the sharing,
and the re-use of health data for rare cancers