IDEA4RC

Intelligent ecosystem to improve
the governance, the sharing,
and the re-use of health data for rare cancers

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IDEA4RC at Vitalis 2025

The IDEA4RC project is participating in Vitalis 2025, the largest eHealth event in Scandinavia, taking place in Gothenburg from May 19 to 22.

Project partners will present ongoing work and share insights into the solutions being developed to support the secondary use of health data for rare cancers research and care.

On May 19th, 15:00-17:00, Annalisa Trama and Eugenio Gaeta will give the opening keynote Transforming Healthcare with Digital Innovation. The opening event can be followed live on LinkedIn https://www.linkedin.com/events/7328718477282689028/about/

On May 21st, 9:00-11:50, technical partners will showcase IDEA4RC components developed so far in the IDEA4RC Open@Vitalis Technical track. A recording will be available on IDEA4RC YouTube channel after the end of the conference.

On May 21st, 13:00-17:00, IDEA4RC will presents its vision and solutions the public in Gothenburg, during the track A real-world solution to secondary health data use in cancer: the IDEA4RC project. A recording will be available on IDEA4RC YouTube channel after the end of the conference.

The detailed program of this track is the following:

  • 13:00-13:15 – “Intelligent ecosystem to improve the governance, the sharing, and the re-use of health data for rare cancers (IDEA4RC): an introduction”, Andreas Muth (Sahlgrenska University Hospital)
  • 13:15-13:30 – “The need for data in rare cancer – a patient perspective”, Magnus Carlsson (former chairman of the Swedish Sarcoma Association)
  • 13:30-15:00 – “Showcase Data-reuse challenges tackled with IDEA4RC solutions”
    • “Data re-use for research: which challenges?”, Annalisa Trama (National Cancer Institute of Milan)
    • “The data holder journey in IDEA4RC”, Eugenio Gaeta (Universidad Politécnica de Madrid)
    • “Security, privacy and trust in IDEA4RC”, Eugenio Gaeta (Universidad Politécnica de Madrid)
    • “Extract transform and load (ETL) for IDEA4RC. A new paradigm for data gathering”, Vincenzo Falanga (Engineering Ingegneria Informatica S.p.a.)
    • “Data modelling, interoperability and NLP for data extraction”, Unai Zulaika (Universidad de Deusto)
    • “The user journey with IDEA4RC solutions”, Itziar Alonso (Universidad Politécnica de Madrid)
    • “Data findability and understanding: solutions by IDEA4RC”, Adrián Dantas (Universidad Politécnica de Madrid)
    • “Federated analysis”, Frank Martin (Netherlands Comprehensive Cancer Organisation)
    • “Breaking barriers to collaboration: IDEA4RC access”, Ioanna Drympeta (Centre for Research & Technology, Hellas)
  • 15:30-15:50 – “Legal/privacy challenges of today: EU perspective”, Guillaume Byk (European Commission)
  • 15:50-16:10 – “Danish perspectives on secondary use – moving towards EHDS”, Sigrun Gyrtrup (Danish Health Data Authority)
  • 16:10-16:30 – “Legal/privacy challenges of today in Sweden”, Tina Chavoshi (Swedish eHealth Agency)
  • 16:30-17:00 – “Round Table The way ahead from a Nordic countries and European perspective”, moderated by Sébastien Ziegler (European Center for Certification and Privacy)
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