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The role of real-world data in cancer clinical research
The emergence of the precision medicine paradigm in oncology has led to increasing interest in the integration of real-world data (RWD) into cancer clinical research.
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Second IDEA4RC plenary meeting in Venice
On the 19 and 20 April, IDEA4RC consortium members will meet in Venice for the first time after the beginning of the project. The meeting will be held in the main building of the Università Ca’ Foscari, in the heart of the city. Participants will convene on Wednesday 19 at lunchtime and the meeting will…
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IDEA4RC at ECHNO 2023
Pablo Parente Arias, surgical oncologist at Fundacion Profesor Novoa Sanots, presented IDEA4RC during the 10th European Congress on Head and Neck Oncology that took place in Lisbon from 8 to 11 March 2023 (ECHNO). Here you can find the program of the Congress. Head and neck cancers are one of the two families of rare…
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Partners
Clinical centers Centre de Lutte Contre le Cancer Leon BerardAssistance Publique Hopitaux De ParisInvestigación Sanitaria de la Fundación Jiménez DíazVästra GötalandsregionenNarodowy Instytut Onkologii im. Marii Skłodowskiej-CurieFakultní nemocnice v MotoleOslo UniversitetssykehusMasarykův onkologický ústavFundación Profesor Novoa SantosUniversitätsklinikum EssenFondazione IRCCS Istituto Nazionale dei Tumori Technical partners Universidad de La Iglesia de Deusto Entidad ReligiosaMultimed Engineers S.r.l.Universidad Politecnica de…
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Data management plan
The Data management plan outlines the framework, procedures, and governance structures for managing health data on rare cancers within the IDEA4RC project, funded by Horizon Europe. You can download the deliverable here.
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Quality plan
The Quality plan describes the procedures established to fulfill the project’s goals, based on a quality-driven framework within which the project will be conducted and implemented. The quality framework incorporates three main dimensions: data quality monitoring, compliance with ethical and legal regulations, and technical quality. This document complements the quality provisions foreseen in the Technical…
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Project
What is it about? IDEA4RC is a Horizon Europe project led by Istituto Nazionale dei Tumori (Milan, Italy). The project started in September 2022 and will stretch over the course of four years. Its objective is building an intelligent ecosystem to improve the governance, the sharing, and the re-use of health data for rare cancers.…
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An intelligent data ecosystem for rare cancers
IDEA4RC aims at developing an IT infrastructure to facilitate the sharing and re-use of health data among clinical centers to promote research on rare cancers and improve patients’ access to high quality care. Our challenge is building a new tool to overcome interoperability issues and make it easier to comply with privacy regulations. IDEA4RC is…
Intelligent ecosystem to improve
the governance, the sharing,
and the re-use of health data for rare cancers