Intelligent ecosystem to improve
the governance, the sharing,

and the re-use of health data for rare cancers

WP2 Ecosystem co-creation

  • Pilot data governance

    The deliverable “Pilot Data Governance” details the work done so far by the consortium to identify the legal and ethical requirements needed to deploy the pilot projects across the 11 clinical centers involved in IDEA4RC. Pilot projects are case studies which will serve to test the IDEA4RC ecosystem. They will be selected among the research…

  • EU legal landscape on health data sharing and re-use: interview with Vasiliki Tsiompanidou

    In the previous months European institutions have added new pieces to the legal landscape of the Union regarding artificial intelligence, data and health data in particular. The EU is doing so to protect basic human rights while at the same time not hampering innovation and favoring data exploitation to improve European citizens’ quality of life.…

  • Metadata Taxonomy

    This deliverable presents quality metadata and the head and neck cancers common data model that will be adopted within IDEA4RC.

  • Data Ecosystem reference architecture

    This deliverable is divided in two parts. The first one contains a state-of-the-art analysis of security and privacy requirements for health data sharing and re-use and a corresponding state-of-the-art analysis of technologies and architectural approaches that can satisfy those requirements. The second part focuses on the IDEA4RC ecosystems and outlines the architectural choices that will…

  • Ethical data governance

    This deliverable offers a first version of the data governance model for the IDEA4RC data ecosystem. It is based on the analysis of the ethical and legal requirements for the secondary use of health data within the European Union, from which a set of guidelines that fulfil the principles of Ethics by Design and by…

  • Data ecosystem value analysis and scenarios

    This deliverable identifies the values and positions of the IDEA4RC stakeholders at the start of the project and traces the steps to follow their evolution in time. Based on starting values and positions it formulated three possible implementation scenario for IDEA4RC.

  • Co-creation workshop: let’s get started

    The objective of the first co-creation workshop is to elicit the main values and concerns the IDEA4RC consortium partners experience in regard to the sharing, use, and re-use of data in the context of establishing a data eco-system for rare cancers. The workshop will take place in Venice at the end of the second consortium…