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What is it?
IDEA4RC partners wish to engage in an open and ongoing dialogue with a wide and diverse group of stakeholders, who may benefit from the IDEA4RC data ecosystem. They are welcome to provide significant insights during the development of the ecosystem.
Future data providers, data users, healthcare actors, health-related business, patient advocacy groups have already joined the IDEA4RC Community of Interest and participated in a four-webinar series that can be watched here.
The project has now entered a pivotal phase. Tools have been developed and are currently being tested on real-world data. To take root and grow, the project needs new allies in the Community of Interest: clinical centres, tech companies, and engaged health stakeholders.
For whom?
Clinical centers
Willing to contribute data securely and join a European network that makes rare cancer information visible and comparable.
Health tech companies
Interested in exploring, integrating or adopting the tools developed within the project, bringing then closer to real-world application and sustainability.
Policy makers researchers patients
Who can support disseminate and help anchor IDEA4RC’s work beyond the scope of EU grant.
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JOIN THE COMMUNITY!
Webinar series
Between January and April 2025 IDEA4RC hosted a four webinar series to show its innovative solution for the secondary use of health data. To find out more, watch the webinars.
January 20th, 2025 h 5:00-6:00 p.m. CET
Towards an intelligent data ecosystem for rare cancers: the IDEA4RC project
Annalisa Trama (Ist. Naz. Tumori), cancer epidemiologist, IDEA4RC and EURACAN Registry coordinator
February 19th, 2025 h 5:00-6:00 p.m. CET
Automatising data extraction and securing data storage: the data flow in IDEA4RC
Eugenio Gaeta (Uni Politécnica de Madrid) and Unai Zulaika (Universidad de Deusto), IT experts in IDEA4RC
March 26th, 2025 h 5:00-6:00 p.m. CET
The European Health Data Space (EHDS): the new EU regulation on the re-use of health data
Vasiliki Tsiompanidou (European Centre for Certification and Privacy), legal expert in IDEA4RC
April 28th, 2025 h 4:00-5:00 p.m. CET
Data altruism: principles and IDEA4RC solutions to enable data donation
Ioanna Drympeta (Centre for Research and Technology Hellas), legal informatics expert in IDEA4RC
Vasiliki Tsiompanidou (European Centre for Certification and Privacy), legal expert in IDEA4RC