-
Pilot projects selection
IDEA4RC aims to develop a federated data ecosystem for rare adult solid cancers focusing on two groups of these cancers: soft tissue sarcomas and head and neck cancers. The ecosystem will be tested through measures of quality, usefulness, usability, and efficiency, collected in real world use cases. This deliverable provides a description of the research…
-
Data management plan
The Data management plan outlines the framework, procedures, and governance structures for managing health data on rare cancers within the IDEA4RC project, funded by Horizon Europe. You can download the deliverable here.
-
Quality plan
The Quality plan describes the procedures established to fulfill the project’s goals, based on a quality-driven framework within which the project will be conducted and implemented. The quality framework incorporates three main dimensions: data quality monitoring, compliance with ethical and legal regulations, and technical quality. This document complements the quality provisions foreseen in the Technical…
-
Stakeholder engagement plan
The stakeholder engagement plan has two main objectives. First, promoting the IDEA4RC data ecosystem among clinical centers to enlarge its adoption. Second, creating a community of interest that includes a wider range of subjects, such as health professionals, patients’ organizations, data protection, health authorities and pharmaceutical companies in order to gather feedbacks on the platform…
-
Communication plan
Communication, dissemination and exploitation activities have the ultimate objective of fostering the progression from the results of the project toward its outcomes. The ultimate aim of IDEA4RC is enabling the re-use of quality health data by researchers in the rare cancers domain and beyond, which is currently undermined by lack of interoperability and by the…
Intelligent ecosystem to improve
the governance, the sharing,
and the re-use of health data for rare cancers