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IDEA4RC at the workshop on rare diseases, global health and social sciences
On 11 May 2023, Claudia Egher, social scientist at the University of Utrecht, will be presenting the work she is conducting within IDEA4RC together with Susan van Hees and Wouter Boon at the workshop ‘Rare Diseases, Global Health, and Social Sciences: Counterbalancing Biomedical Reductionism’ organized by the Association for Anthropology and Medicine (AGEM). You can…
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Co-creation workshop: let’s get started
The objective of the first co-creation workshop is to elicit the main values and concerns the IDEA4RC consortium partners experience in regard to the sharing, use, and re-use of data in the context of establishing a data eco-system for rare cancers. The workshop will take place in Venice at the end of the second consortium…
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Newsletter Signup Form
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Second IDEA4RC plenary meeting in Venice
On the 19 and 20 April, IDEA4RC consortium members will meet in Venice for the first time after the beginning of the project. The meeting will be held in the main building of the Università Ca’ Foscari, in the heart of the city. Participants will convene on Wednesday 19 at lunchtime and the meeting will…
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Partners
Clinical centers Centre de Lutte Contre le Cancer Leon BerardAssistance Publique Hopitaux De ParisInvestigación Sanitaria de la Fundación Jiménez DíazVästra GötalandsregionenNarodowy Instytut Onkologii im. Marii Skłodowskiej-CurieFakultní nemocnice v MotoleOslo UniversitetssykehusMasarykův onkologický ústavFundación Profesor Novoa SantosUniversitätsklinikum EssenFondazione IRCCS Istituto Nazionale dei Tumori Technical partners Universidad de La Iglesia de Deusto Entidad ReligiosaMultimed Engineers S.r.l.Universidad Politecnica de…
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Data management plan
You can download the data management plan here.
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Quality plan
This Quality Manual describes the procedures established to fulfill the project’s goals based on a quality-driven framework within which the project will be conducted and implemented. The quality framework incorporates three main dimensions: data quality monitoring, compliance to ethical and legal regulations and technical quality. This document complements the quality provisions foreseen in the Technical…
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Project
What is it about? IDEA4RC is a Horizon Europe project led by Istituto Nazionale dei Tumori (Milan, Italy). The project started in September 2022 and will stretch over the course of four years. Its objective is building an intelligent ecosystem to improve the governance, the sharing, and the re-use of health data for rare cancers.…
Intelligent ecosystem to improve
the governance, the sharing,
and the re-use of health data for rare cancers