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An intelligent data ecosystem for rare cancers
IDEA4RC aims at developing an IT infrastructure to facilitate the sharing and re-use of health data among clinical centers to promote research on rare cancers and improve patients’ access to high quality care. Our challenge is building a new tool to overcome interoperability issues and make it easier to comply with privacy regulations. IDEA4RC is…
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Privacy Policy
Information on the processing of personal data Pursuant to Article 13 of the EU Regulation 2016/679 (hereinafter, the Regulation), this page describes the processing operations performed on the personal data of the users visiting the website https://www.idea4rc.eu/. This information notice relates exclusively to the website https://www.idea4rc.eu/ and not also for other websites that may be…
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Stakeholder engagement plan
The stakeholder engagement plan has two main objectives. First, promoting the IDEA4RC data ecosystem among clinical centers to enlarge its adoption. Second, creating a community of interest that includes a wider range of subjects, such as health professionals, patients’ organizations, data protection, health authorities and pharmaceutical companies in order to gather feedbacks on the platform…
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Communication plan
Communication, dissemination and exploitation activities have the ultimate objective of fostering the progression from the results of the project toward its outcomes. The ultimate aim of IDEA4RC is enabling the re-use of quality health data by researchers in the rare cancers domain and beyond, which is currently undermined by lack of interoperability and by the…
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IDEA4RC goes to ECHNO 2023
Pablo Parente Arias, surgical oncologist at Fundacion Profesor Novoa Sanots, will present IDEA4RC during the 10th European Congress on Head and Neck Oncology that will take place in Lisbon from 8 to 11 March 2023 (ECHNO). Here you can find the program of the Congress. Head and neck cancers are one of the two families…
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IDEA4RC in the OECI magazine
IDEA4RC made its first public appearance in December 2022 in the magazine of the Organisation of European Cancer Institutes (OECI). You can read the article in the OECI magazine here.
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Find us on Twitter and LinkedIn
The communication team just set up the project social media accounts. Please find us on Twitter and LinkedIn to get the latest updates about the project. Follow us also using the hashtag #IDEA4RC.
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Kick-off meeting in Milan
On 28 September IDEA4RC officially started with a meeting held at the Istituto Nazionale dei Tumori in Milan. Participants received a warm welcome by the scientific director Giovanni Apolone, who stated the importance of the project for its contribution to the efforts the European Commission is devoting to promote cancer research, in particular through the…
Intelligent ecosystem to improve
the governance, the sharing,
and the re-use of health data for rare cancers